My neurologists never asked me how I'm emotionally coping with my epilepsy and the challenges it faces in daily life as I'm growing up. My feelings about my seizures effected my willingness to comply with prescriptions. We need doctors more attuned to the emotional impact of disabilities and an integration of mental health services.
3. Health & Healthcare Access
Health & Healthcare Access
What ideas do you have about physical and mental health and well-being that could help you and your peers become successful adults? This topic includes ideas for what doctors, nurses, insurance providers, counselors, personal assistants, families, and policymakers can do. These ideas can deal with any places that are there to help you to take care of your health, including hospitals, pharmacies, insurance agencies, and other places. When you are ready to share your ideas click the Submit New Idea Button on the right to join the conversation!
When we think health or healthcare, we usually think of physical health and dieting. As important as this matter is, there are many other types of health that are equally, if not more crucial than physical. Here is a list of personal types of health: 1. Mental Health 2. Social Health 3. Emotional Health 4. Spiritual Health 5. Physical Health Of course, there are dozens of other categories to address as well. For example, ...more »
Find out if the doctor's office, exam tables, and diagnostic equipment are physically accessible before you make an appointment. If there is another mode communication needed (e.g. sign language) find out when (not if as they are required) interpreters are available. Make sure the doctors understand your disability in addition to any illness being treated.
Make up a lists of 1. medical conditions 2. medications 3. hospitalizations/surgeries 4. treating doctors and bring them to each visit.
It would be great if all medical/mental health service providers could make better use of text and email as a means of contact and appointment making. Talking on the telephone with strangers and navigating complicated voice mail systems make access to services difficult and impossible for many. Just the thought of going through that will cause them to put off needed medical attention.
What can we do as a community to promote medically accurate healthcare information so that people with all different disabilities are getting informed and educated information? I hear a lot of myths about people with disabilities not being interested in health, reproduction, sexuality, etc - and that is why the information is not being provided or promoted.